Today I am confused.

I know I wrote a bit already about living on medication, being easily distracted and the brain fog that comes with chronic pain , fatigue and medication.

Today, along with that I’m worried over issues that are very personal to me. I have a very sick horse who is like a member of my family in the vet hospital at the moment. It is hurting that there is nothing I can do, nothing at all that will make any difference. It really bothers me that I have no control over what happens to her now and I must rely on the vet. I have faith in the vet and trust them, it just hurts that I can’t do anything.

That is related to a deeper fear, loss of control…

Also on today’s menu we have fear of letting down the family because of brain fog interfering with normal housekeeping duties, a hearty main course of pain, served with fatigue and a side order of mess from not tidying enough. We will follow that with a fine dessert of the frustration of losing ideas and memories to brain damage and brain fog.

There is some relationship here with this lose of control thing, to not being self sufficient and losing interest in looking after myself, having no Me Time and taking pride in my appearance.

I’m losing impetus to getting started to enjoy my world . There’s always the guilt trip I take myself on and lack of compassion for myself because I feel I’m not making the most of what life has to offer. I have had near death experiences and I am frustrated with myself for not making every day count.

Procrastinating and not learning a lesson from my own ideas to beat it seriously annoys me!

I have been in a bad way mentally but am getting my act back together. Until the next time at least .

I have been spending some time in a place very very dear to me and allowing my surroundings to wash over me, bringing peace, tranquility, sense of self and appreciating what this place gives me.

I wonder if without that would I be able to cope with my present situation?

My thoughts are everywhere, spread wide and jumping from one thing to another without completion and it leaves me edgy, nervous with no real focus on what is the thing that needs addressing, where to start to smooth some of the jagged edges.

I want to reach out to make a connection somewhere but the same old soul sucking blanket creeps over me, am I worth anyone’s time?

When will I be found out I’m not anything, that I’m me? When do I stop checking around, behind, ahead for the next attack on my world, when I get exposed as not being good enough or having made a huge mistake somewhere that I didn’t realise about?

I know I’m not the only one that feels like this but it makes you feel lonely. Alone and looking in from the outside.

I hope to find some support , understanding and backup on this journey but I’m just going to keep trying to steadily push forward and gain some more understanding of what’s happening to me and so many others

Pilgrim

X

Why do I compare myself, my abilities and my life to how others portray themselves…

How many times have I compared myself to others social media success stories? Those ones where you know the owner of those stories is bullshitting?

The constant bright shiny status updates that make me feel inadequate and less. Feel like giving up and I’m not sure what I should be giving up – give up some nameless unspoken competition? Why not in a good way, why more like there’s no point trying because no matter what I do it will never match up to those bright twinkling statuses. I’m not worth anyone’s time and I’m smaller, somehow less me and somehow dingy and dirty.

Even the ones that I know are a smooth featureless constant stream of false declarations “look at me, my life is most wondrous , sprinkled with fairy dust and pure gold glitter “ they still get to me somehow, even though I know they aren’t quite as blissfully happy as they project…

I still feel as though somehow they have achieved something I’ve missed, something I’ve looked at from the outside,something I’ve been reaching for but never quite grasped as it slips away again and I submerge under the wave of depression, waiting for the time I’ll roll back up again to thrash around frantically trying to grab that slippery glittery beast that is called Happiness. Success. Achievement. The admiration that others appear to expect, to bask in…

I didn’t want to be in any competition. Don’t want to compete with other’s loveliness , didn’t set out to best anyone else. I’m not interested in being someone else, in projecting a false impression of my life, pretending to be something I’m not.

So why do I still find myself sometimes comparing?

I want to work on acceptance of my good qualities as well as getting a grip on the bad. Balance and harmony are within reach, I just need to learn how to accept and allow them.

Xx

Effects of medication

Today I wanted to write about the effects of living with taking lots of medication.

First though, before I start waffling I’d like to say something. I have recently been in a hard place mentally, been struggling with the demons of depression and have had some trouble getting the anxiety under control…

Thank you Gem @GemsQuirkyGemsQuirky for reaching out and touching me when it mattered.This girl is a star and does a great podcast too!

So, living on medication. I take a fair few medications for one thing or another ( and another. And another. And anoth… Ah, you know ) so I do understand how it feels to spend your days in a cloud. What I don’t quite get is the change from one day to the next how these drugs affect me – some days I feel quite with it, fairly on the ball. Other days I’m so far off the ball Im not too sure there ever was a ball – was I imaging the ball? Maybe the ball is off having a cup of tea with the plot coz I lost that too.

Ok, I knew it. Here’s where the waffle starts now, please feel free to laugh.

I heard someone mention brain fog the other day. Oh yes, I feel that lady’s point. Brain fog, it’s a state I find myself in frequently. When you feel as if you ( just you ) are looking out through a thick layer of fog that’s wrapped around you, you’re breathing it in and it’s moulded around your contours, weighing you down.

I haven’t ever spoken to my doctor about this. I wonder what he’d say?

I don’t want the hassle of trying to cope with the effects of changing my meds. I’ve no clue which one causes brain fog and fatigue- most of them probably. There must be some sort of reaction between all these pills – sometimes I think there’s some kind of chemical fusion reaction happening!

There’s a strange sort of fascination in me about the effects of all these drugs. I recon I’ve got more shit floating around in me than most people would think is possible but I do still give myself a hard time for feeling tired or foggy.

I’m going to try and find out a bit more about how medication affects fatigue. I expect there’s a lot of information out there about it, I just haven’t come across it yet.

I’ll come back with a future post about what I find!

Hurting today.

Trying to get my fears and worries straightened  out without hurting anyone , trying to hide the problems, appear strong. Protect the ones I love.

But there’s trouble here, as much as I’m trying to force out the darkness and keep all under my wing secure.

I’m hurting so much, I don’t know where to turn. I’ve lost my friends because I haven’t had the energy and interest to keep being interested and interesting. 

I can’t speak to my partner, not because he’s deliberately not interested but he’s not, really. He’s said himself that all he can do is agree with me, he doesn’t know what to say or how to think so although you’d imagine it would be good to have someone agree with all you say , actually it’s awful sometimes because I know I’m talking to myself.

He can only nod and agree with all I say – so I am sitting talking to my own reflection and like my reflection when I move away the memory, the involvement is finished. 

Moving pictures and bright colours catch his attention and the focus is away from me and on to the distraction  or whatever the interest is. Not deliberately, it just happens and I can see it every time. I hurt every time. But it’s not anyone’s fault and I feel guilty for minding…

There is polite pretence at listening , understanding, but no pretend involvement- that isn’t really understood and after all these years it’s known it isn’t needed, really. 

Only by me… 

Yes, but that part of me isn’t understandable by my life partner. It’s  that the mental wires just don’t connect his real understanding and engagement, any involvement or investment. 

It’s not deliberately done, it just happens, it’s difficult to keep his attention for too long. That timeframe varies so much too.

It’s so hard to always be the support, forever understanding how his wiring works. He’s worth it but it’s lonely and I don’t know where to go from here. It’s sad but I won’t keep on except when I think it’s really important. 

This, the latest thing is important. One big thing balanced on top of a tottering pile of small, medium and big unresolved problems.

Is there any good in me? These continual failures are adding up. .

It’s painful.

I so want to help , but the harder I try the more mess I make.

I feel stupid for hoping there was any way forward, well , any improvements for me anyway. Partner is completely happy with how things are. That’s the thing with being on the autistic spectrum. His social responses, they aren’t there in the way other people expect them to be.  For us, what’s  reasonable and normal is not at all what others expect but we manage.

It would be cruel of me to turn that inside out.

I don’t want to cause hurt, I’m grateful for the things I have, I truly am.  I don’t need much to be fair, just want some support and care through the painful times.

Maybe one day I will learn to live with what I have. Im just in pain now. It’ll pass.

So tired.

Pilgrim

Hope

Sometimes you have to feel a little hope.  Hope that your next project will come off, or that your last project stays successful.  Hope that you can see a light at the end of the tunnel, or that the light says bright for a while.

I don’t feel cheated when the light at the end of the tunnel turns out to be a light to shine along the path ahead, I just get a bit pissed off when the light shows itself for a bit then is snuffed out as if it simply didn’t exist – a bit of a will of the wisp. Leading you onward with the promise of good times ahead.

Thing is, there are good times ahead aren’t there? Even when the wisp of light is dim or has disappeared it’ll be back – often when you don’t expect it. There is a corner up ahead or a fork in the road. Both of those things need dealing with, in maybe slightly different ways though.

Thing is, we do have to be prepared to deal with the consequences of our choices. But our choices don’t always lead us to where we were expecting to go, do they? So many times I have hated myself and berated myself, shown no tolerance for the mistakes I have made. Often those mistakes are influenced by circumstance and I have blown the problem out of all propotion in my mind…

Thing is, no one wants to think they are weak but it’s natural to notice there is weakness inside us. We all have weaknesses. All of us. We have strengths too but sometimes in  response to what’s happening around us things can all be too much and we understandably  get swamped for a bit.

Remembering how I would treat a loved one in my situation does help sometimes. I find words of encouragement then! Also, I do talk to myself. That way I can be sure someone is listening 🙂  Give yourself a break, treat yourself and speak to yourself the way you would someone you really care about. It’s worth a try, really it is.

X

Morning – a cup of tea with procrastination

Funnily, I’ve been putting this off for a couple of days…

I really feel that procrastination is a big stumbling block on my journey.   Nearly every time I decide on a plan of action I find a multitude of things to do first, often things that could be done later or not at all just yet.  Unfortunately this isn’t really helpful on my quest to feel better about myself, I usually can’t understand where the time has gone. Maybe time to check the clocks in the house for accurate to-the-second timekeeping. Or clean the clock. Or maybe it’s a better idea to just think back to where I might have lost anywhere between several minutes to several hours? Err, what was I doing?

I’ve even found ways to avoid making simple steps to do something about that,seems  I’m good at losing time, maybe not so hot at keeping it!

So I’ve decided to look into some ways to get a grip on it.

I’ve a few new thoughts on ways to manage it. It appears that this is often linked with anxiety and depression and it’s a problem thats never going to make me feel upbeat about the day, unless I saw the day being spent wandering around finding ways to waste the day…

Some ways of getting to grips with procrastiation include ideas like if you are the kind of person who responds well to being encouraged by friends try setting a goal for yourself and asking friends on social media to get behind encouraging you.

That really doesn’t work for me, it’s just not my thing at all. I hate asking anyone for help.

So alternatively if you’d rather keep your goal to yourself try setting an alarm, this helps remind you of how quickly time slips by with an added bonus of you knowing a task should be started and/or completed by your alarm time! Probably breaking a big thing into smaller chunks when you can is useful sometimes but don’t overwhelm yourself with lots of tasks that you will avoid…  Is it questionable though whether that will just remind me how useless I am at getting things done?

A bit of delegating can help if that’s possible – in other words getting someone else to help get something done can give you a push to get your part of the job done, it’s not good to have that other person giving you The Look.. you know, the one that says ‘what are you waiting for??’ Ah, there’s guilt again.

Everyone has stumbling blocks, it’s ok to know you have flaws. Really expecting too much of yourself leads to bigger stumbles and eventually longer spaces between trying.

Interestingly, I reckon I procrastinate because I feel it’s easier not to face the world and try to achieve something. I find it very hard to try to achieve when someone – anyone,anyone at all – could see me. I frequently don’t want to try anything if someone else could possibly watch me. It’s hard to find a way of doing something where there is nobody at all who can see. It’s not practical or even possible to do everything privately, rationally of course I know that but do still find it hard to be seen, in fact it’s harder as I’ve got older. That’s something I need to get to grips with a bit, if I find a way to do that it would help a great deal…

Watch this space?  Or shall I have another cup of tea first?

x

 

Hitting the lows… Time for A New Start?

So, feeling that I’m is useless is a fine way to start the rest of my life. Because that’s what this is, the start of the rest of my life. Each moment is a new start but I can’t keep starting again and again every moment, because of course all those new starts would be exhausting! I think maybe a better way to treat it is like the chance to take small victories forwards, trying to build on that is far better for me at the moment than the big grand guesture of    ‘A New Start’. I want to make a fresh start, I want to feel as though I could turn all this on it’s head but I don’t want to keep failing when my old insecurities and loathing make a whole New Start right along with me

Me:   Right, Im not having this, I’ve felt low for long enough,I don’t have to live like this. Everyone else can make a fantastic success of life, so can I. Time for the famous A New Start.

My Depression:  Ok, what are we waiting for? Lets do this!

How tiresome to start all over again dragging the same old baggage around. I would like to work on trying to accept that no, it’s not going away overnight, yes, it’s part of me but no it doesn’t have to be the only part worthy of notice. Mine or anyone’s for that matter. I’d like to accept that most of the time that whole need to hide the issue of my own depression is just one of the things I’m wasting my energy on… what can  i do that’s a better use of energy?

I don’t have too much energy at the best of times, being in pain day after day is wearing me out enough on it’s own without being aided and abetted by other wearisome things. The get up and go got up and went, taking the spring chicken with it.  I’d like to be serenely sailing into my later life holding the wisdom of the universe, dispensing kindness and knowledge freely – instead of which I seem to be lurching from one crisis to another dispensing slightly hare-brained chatter and a pat on the back to all around me, leaving a wake of people behind me who are actually probably rather befuddled as I pass by, trailing what I fondly imagine to be  sageness with savoir-faire.

So, time to adjust my thinking slightly.  Easy enough to say! Funny how it’s as clear as mud…